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The Remaining Chapters

A personal account of medical neglect, administrative obstruction, and the documentation that made accountability possible.

Matt Dispensa

I did not set out to become an expert in the Bureau of Prisons' Administrative Remedy Process. I became one the way most people do — by needing it desperately, finding it broken, and having no one to help me navigate it.

What follows is my story. I share it not for sympathy, but because I believe that understanding what happened to me — and why — is essential context for understanding why Remedy Navigators exists. The failures I experienced were not random. They were systemic. And the only tool that works against a systemic failure is a documented record.

01

Arriving in the Wrong Place

I self-surrendered to federal custody on January 27th, 2025. Self-surrender means you arrange your own transportation to the designated facility on the date provided by the BOP. Weeks before that date, I had been officially designated to FMC Devens — a federal medical center in Massachusetts specifically designed for inmates with significant medical needs. I had confirmed that designation, prepared my medical documentation accordingly, and made arrangements based on that assignment.

Three days before January 27th, I received a call from the BOP telling me that my designation had changed. I was no longer reporting to Devens. I was now required to self-surrender to FCI Allenwood in White Deer, Pennsylvania. Three days. That is the amount of time I had to cancel the arrangements I had made for Massachusetts, arrange private transportation to central Pennsylvania — commercial flights to that part of the state are limited, and the timeline left no margin for error — and present myself at a completely different facility on the same surrender date. I did all of that. I arrived at Allenwood on January 27th as required.

When I arrived at FCI Allenwood in Pennsylvania, I was told immediately that I was at the wrong prison. The BOP's own computer system showed Devens as my designation. What had happened, staff explained, was that a correction had been entered the previous Friday — reassigning me to an undesignated status. Because I had nowhere else to go on my self-surrender date, they took me into custody. There was no bed space available in general population. They would place me in the Special Housing Unit — the SHU — until a transfer could be arranged. They told me it was a system error and that I would eventually be rerouted to Devens.

This was not a minor administrative error. FMC Devens is a medical facility. FCI Allenwood is a general population prison. The distinction matters enormously for someone with my medical history. I had sustained a traumatic brain injury in January 2021 — a fall on ice that resulted in a diagnosis of Persistent Post-Concussion Syndrome, or PPCS. Over the following four years, I worked with a board-certified neurologist to develop a treatment protocol that managed my symptoms: Adderall for cognitive impairment, Nurtec for migraines, Lunesta for the sleep disruption that amplifies every other symptom, and a CPAP machine for the sleep apnea that I had been managing for years prior to the injury. I had brought both my prescribed medications and my CPAP with me to the facility.

None of that medical history changed the fact that I was in the wrong place. And in the weeks that followed, I would learn that being in the wrong place — medically, administratively, geographically — was not something the Bureau of Prisons was inclined to correct quickly.

The physician assistant at Allenwood documented my headaches and my PPCS diagnosis. When I was transferred to USP Lewisburg, the PA there documented the same. The record was consistent and clear across two facilities. When I finally arrived at FMC Devens — the facility I had been designated to from the beginning — my primary treating PA conducted an intake evaluation and wrote in his notes that I reported no headaches.

I had been reporting headaches at every medical contact since the day I arrived in federal custody. But the documentation trail did not begin at Allenwood. It began before I ever walked through a prison door.

As part of the federal sentencing process, a Pre-Sentence Report is prepared by the court and provided to the Bureau of Prisons prior to an inmate's arrival. Mine detailed my medical history in full: the traumatic brain injury, the diagnosis of Persistent Post-Concussion Syndrome, the ocular migraines, and the specific treatment protocol my neurologist had developed over four years. This is not informal paperwork. It is a federal court document. The BOP receives it. The receiving facility reviews it. FMC Devens — a medical center, the facility specifically designated to handle inmates with complex medical needs — had my complete medical history before I arrived.

Two prior facilities had documented my headaches correctly. My Pre-Sentence Report had documented them correctly. Both Allenwood and Devens had represented, in their own records, that they had submitted requests for my outside medical file from my neurologist, Dr. Rind. I signed the release authorizations at both facilities. Dr. Rind never received a request from either of them. He was never contacted. The documentation inside the BOP system shows a records request was made. The reality is that it was not. My neurologist's treatment records — four years of documented PPCS management, the medication protocol, the clinical history — were never obtained, despite my signed authorization and the BOP's own representations that they had been requested.

The intake note at Devens that said I reported no headaches was not a misunderstanding. It was a choice. And it was a choice that, once entered into the record, became the foundation on which every subsequent treatment decision was built.

02

The SHU: 93 Days Before a Bed

The Special Housing Unit — the SHU — is where the BOP places inmates who have committed infractions within the prison system, posed a security risk, or, as in my case, have no other assigned bed. It is not what most people picture when they hear the word isolation. The cells are doubles. You may be housed alone or with another person. At Allenwood, I had the cell to myself. At Lewisburg and later at Devens, I shared.

What the SHU does restrict, completely, is everything else. No telephone. No internet. No access to news or current publications. The only reading material available was a library cart that circulated through the unit — novels, mostly, accumulated over the past two decades. On the days when my headaches were manageable, I tried to read. Those days were not frequent. Most of my headaches progressed into ocular migraines — a variant that disrupts vision, making it impossible to focus on text. I spent most of my time horizontal, in a cell, waiting.

I remained in the SHU for 93 days across three facilities before I was placed on an actual housing unit. Thirty days at Allenwood. Approximately two weeks at USP Lewisburg — a transit facility on the East Coast transfer circuit, where inmates are held while being routed to their permanent designations. Then, when I finally arrived at FMC Devens, the facility I had been designated to from the beginning, I was placed in the SHU there as well — for approximately 60 days — due to a lack of available bed space on the low unit.

Ninety-three days. No phone. No internet. No news. A library cart I could barely use because my eyes would not cooperate. And a neurological condition that is clinically worsened by exactly the kind of environment I was living in: fluorescent lighting, noise, disrupted sleep, no access to the treatment protocol that had managed my symptoms for four years.

I had no prior experience with the SHU and no preparation for what it would do to my already-compromised condition. The isolation, the lighting, the noise, the sleep disruption — all of it is clinically contraindicated for someone with PPCS. I spent most of those days horizontal. When I stood, the dizziness was immediate and severe. I would rise, feel the room shift, and sit back down. That was the daily reality.

On February 17th, 2025, I was escorted to the shower — I had told the CO I was unstable and needed assistance, and he had agreed to walk slowly and monitor me. At the shower, standard procedure requires the inmate to slide their hands through the door slot to be uncuffed. I did. The CO walked away. Thirty minutes later, when he returned, I was on the floor. I had lost consciousness. A medical nurse conducted a follow-up evaluation and documented the incident.

That was the first documented collapse in my BOP medical record. It would not be the last.

03

FMC Devens: A Pattern of Misclassification and Neglect

At FMC Devens, I had access to a broader range of medical staff — a psychiatrist, a psychologist, a primary care nurse practitioner, a physician assistant, and the head of medical services. On paper, this was the appropriate level of care for my conditions. In practice, what I encountered was a pattern of misclassification that undermined every subsequent treatment decision.

In mid-March, the facility psychiatrist evaluated me and reached the correct conclusion immediately: my conditions were medical, not psychiatric. She documented this clearly and formally notified the head of medical services, who acknowledged her finding the same day. That acknowledgment is in the record.

Ten days later, the head of medical services wrote in his own clinical notes that I had reported a history of TBI resulting in "post-traumatic headaches." I had never used that phrase. I had consistently reported Persistent Post-Concussion Syndrome — a specific neurological diagnosis with its own ICD-10 code (F07.81), documented by my treating neurologist, listed in my Pre-Sentence Report, and supported by four years of treatment records. Post-traumatic headaches and PPCS are not the same condition. The medications prescribed for PPCS — including Adderall, which addresses the cognitive and neurological sequelae of the injury — are not indicated for generic post-traumatic headaches. Misclassify the diagnosis and you create the justification for denying the treatment.

My CPAP machine, which I had brought with me, was never properly delivered. I was given an incorrect unit. The facility respiratory therapist acknowledged the error and promised to obtain the correct machine. She did not follow through. I continued waking up gasping for air throughout my time at Devens.

My weight at my February 24th physical was 224 pounds. By April 7th, it was 198 pounds. That is a 26-pound loss in six weeks — on top of weight I had already lost at the prior facilities. My primary care nurse practitioner was aware. My primary treating PA was aware. The record documents both.

On April 2nd, my primary PA documented my complaints in a clinical note: severe daily headaches lasting six or more hours, sleep apnea without a functioning CPAP, medications denied. He recorded my pain level as zero. I do not know how that number was arrived at.

On April 7th, at 13:53, the facility psychiatrist wrote what would become the most consequential document in my medical file. She noted that I had reported significant weight loss directly caused by migraines. She noted that the nutritional supplement drinks I was being required to consume were worsening my headaches — they were soy-based, high in sugar, and the act of consuming them triggered nausea. She noted, in plain clinical language, that I was not being treated for my migraines and that I simply wanted my migraines treated.

Fifty-nine minutes later, at 14:52, my primary treating PA wrote a follow-up note. He documented severe headaches all day long. In the field marked "interventions/meds," he entered one word: nothing. In the field marked "exacerbating factors," he entered one word: nothing.

He had been my primary treating provider for six weeks. He had received documented complaints — in person, in writing, through the formal grievance process — about light sensitivity, noise sensitivity, the nutritional supplements worsening my symptoms, and the inadequacy of the substitute medications the BOP had provided. He wrote nothing.

04

What Happens When You Push Back

I want to address something directly, because it is relevant to anyone reading this who is experiencing something similar.

When I persisted — when I continued to advocate for the treatment my neurologist had prescribed, when I filed formal complaints, when I refused to accept characterizations of my condition that I knew to be inaccurate — the institutional response was not medical. It was punitive.

I was provided false information about my own medical history. I was subjected to false accusations about my behavior — specifically, that I was staging a hunger strike, a characterization that entered the official record and was later used to explain my weight loss in communications that reached the White House. That accusation was false. The facility's own psychiatrist had documented, the day before my collapse, that I was not eating because my migraines caused nausea. The accusation was not made because it was accurate. It was made because it was useful.

I was threatened with transfer to the psychiatric unit. This threat was made in the context of a medical appointment, framed as a clinical observation about my behavior. It is a known tactic — documented in federal litigation, inspector general reports, and civil rights case law. It is designed to silence people who are sick, isolated, and unaware of their rights. It was effective, temporarily. I was afraid.

And then there were the forms. The BP-9 form I requested and was not provided. The administrative remedy process that requires specific paperwork, filed in a specific order, within specific deadlines — administered by the same institution you are filing complaints against. The circularity is not a design flaw. It is the design.

These tactics — misinformation, false accusations, retaliation threats, administrative obstruction — are not unique to my experience. They appear in federal court records across the country. If you are reading this because someone you care about is experiencing something similar, I want you to understand: you are not imagining it. This is what institutional self-protection looks like from the inside.

05

Fighting the System the Right Way

I did not wait passively for someone to intervene. I used every tool available to me.

On March 26th, I filed a BP-8 — the first formal step in the Bureau of Prisons' Administrative Remedy Process, the mandatory internal grievance system that every federal inmate must exhaust before a federal court will consider their claims. I filed it as a medical emergency. I documented every condition, every denial, every symptom. Under BOP policy, a medical emergency BP-8 requires a response within 72 hours. I never received one.

On April 1st, I requested a BP-9 form — the next step in the process. I was not provided one. I wrote letters instead: one to the Warden, one to the medical administration. I described my deteriorating condition in specific, documented terms. I stated that I was afraid for my health. I received no response.

I raised my concerns verbally at every medical appointment. I documented each interaction. I sent emails through the BOP's official TruLincs system to the medical administrative manager and my unit manager, detailing the ongoing crisis and the lack of response. The medical administrative manager's replies averaged one to three sentences. My unit manager forwarded my emails to medical. Medical responded that they had no documentation from me — a claim directly contradicted by the email record and by the BP-8 filing.

This is the circular referral loop that the Administrative Remedy Process produces when the institution is not acting in good faith. Medical refers you to the unit team. The unit team refers you to medical. The clock runs. The deadlines pass. And when you eventually reach a federal court, the government argues that you failed to exhaust your administrative remedies.

I understand now, in a way I did not when I was living it, that the system is not designed to resolve complaints. It is designed to exhaust the people filing them. The paperwork requirements, the deadlines, the specific forms, the sequential steps — all of it is manageable if you have help. Almost no one in federal custody has help.

That is the gap Remedy Navigators was built to close.

If it is not documented, it did not happen. The system will not remember your verbal complaints. It will not acknowledge the conversation in the hallway, the request at sick call, the pain level you reported. If it is not in writing — dated, signed, timestamped, filed through the correct channel — it does not exist in any record that a court will consider. The BOP's version of events will be the only version. And their version will say you were receiving appropriate care.

Documentation is not a legal strategy. It is the minimum requirement for having any recourse at all. We handle the documentation. You focus on getting through the day.

06

April 8th, 2025

The morning of April 8th was consistent with the preceding several weeks, except that everything was worse.

I had not slept. The migraine was the most severe I had experienced — a ten out of ten, by any measure. My vision was disrupted: pixelated, with light disturbances at the periphery that made it difficult to focus on anything. My balance was significantly impaired. I was relying on my cellmate to assist me with basic movement within the cell. I was unable to eat.

A dietitian came to my door that morning. We discussed my nutritional status. I told her, as I had told every provider for weeks, that I was not refusing to eat as a protest. I was unable to eat because the severity of my migraines produced constant nausea. She documented the conversation and left.

Shortly after, a senior corrections officer arrived for the standing count. I was required to stand. I was shaky, disoriented, and barely able to maintain my footing. I attempted to explain my condition. He was not receptive. He made clear that the count requirement applied regardless of my physical state. I stood. The count ended. I returned to my bunk.

A few minutes later, there was a knock at the door. It was the nurse with the required nutritional supplement drinks. I did not want further confrontation with the corrections officer, who I believed was still on the unit. I got up, steadied myself against the wall, and made my way to the door. The pass-through slot opened. I reached for the drinks.

That is the last thing I remember.

I lost consciousness. I fell. My head struck the floor.

07

The Medical Unit and What the Record Does Not Show

I regained consciousness to find a corrections officer attempting to rouse me and assess my vitals. By the time I was fully aware of my surroundings, I was on the floor of my cell with approximately six corrections officers present. A backboard had been brought in. I was strapped to it and carried out of the cell.

In the Devens medical unit, there were at least six medical staff in attendance. The response included an EKG, blood draws, temperature and vital sign monitoring, neurological assessment, and the application of a cervical collar. My primary treating PA was the senior medical person directing the response. I was in that room for approximately thirty to sixty minutes before being transferred by ambulance to UMass Memorial Medical Center in Leominster.

None of that appears in any medical record I have been provided.

Not the backboard. Not the EKG. Not the blood draws. Not the cervical collar. Not the names of the six medical staff who were present. Not a single nursing note, incident report, or corrections officer log from the period between when I was found on the floor and when I was loaded into an ambulance.

The only record from that day is a clinical note from my primary treating PA, timestamped 13:36 — written approximately two and a half hours after I had already been removed from my cell on a stretcher. In that note, he described me as "resting comfortably in his bunk."

A nurse practitioner's note from the following morning references a health services report about the April 8th incident — a report that is not in the records I received. That reference establishes that the report was created. Its absence from my file is not an oversight. It is a document that exists somewhere in the BOP system and has not been produced.

My primary treating PA does not appear in any medical note, evaluation, or communication after April 8th. He was my primary provider for six weeks. He directed the emergency response. He wrote the only clinical note from that day. And then he disappeared from my record entirely, without explanation, without a transfer-of-care note, without any documentation of why a different provider assumed my care.

08

The Leominster ER and the Letter

At the emergency room, I was treated by an outside physician who prescribed Fioricet — the first medication that provided meaningful relief from my migraines in more than ten weeks. The treatment worked. It had been available the entire time.

The experience at the ER was instructive in a different way. I was shackled at the wrists and ankles throughout. When the ER staff had questions, they directed them to the corrections officers who had transported me, not to me. I was present in the room but functionally absent from my own medical care. The staff deferred to the COs on questions about my condition, my history, and my treatment. I was a patient in name only.

I was returned to the SHU that evening.

Seventeen days later, the Warden received an inquiry from the White House — a request to confirm that my medical care had been appropriate. The inquiry had been initiated by my sister-in-law, who had filed a complaint with the Office of Presidential Correspondence on my behalf. The White House directed the BOP to respond.

The Warden's response was a letter addressed to my sister-in-law. It did not mention the collapse. It did not mention the ambulance transport. It did not mention the emergency room visit. It characterized my care as appropriate, my medications as appropriately managed, and my nutritional supplement regimen as a routine medical order. It contained multiple statements that are directly contradicted by the medical records from the same period.

That letter — written by the Warden of a federal medical center, in response to a White House inquiry, seventeen days after his patient had been transported by ambulance from his facility — is one of the most significant documents in this case. Not because it was written, but because of what it chose not to say.

09

Six Months of Silence

I was returned to the SHU after the emergency room visit. The Fioricet prescribed by the outside physician was not continued by the BOP. The medication that had provided the first meaningful migraine relief in more than ten weeks was discontinued when I crossed back through the facility doors. I was placed back in my cell. The headaches resumed.

What followed over the next six months was not a crisis in the dramatic sense. There was no single event as stark as the April 8th collapse. What there was, instead, was a sustained and documented pattern of requests made and ignored, sick calls filed and dismissed, and a medical condition that was allowed to worsen without intervention because the institution had decided, at some point, that intervention was not required.

I submitted sick call requests. I documented each one. I described my symptoms in writing: the daily headaches, the ocular migraines that made it impossible to read or watch television or do anything other than lie still in a darkened cell and wait for them to pass. I described the nausea. I described the cognitive fog that made it difficult to think clearly, to hold a conversation, to remember what I had been told an hour earlier. I described the sleep disruption that compounded every other symptom. I described all of it, repeatedly, in writing, through the channels the BOP requires.

The responses, when they came, were brief. Medications were reviewed and deemed appropriate. My condition was characterized as stable. The treatment protocol my neurologist had developed over four years — the one that had managed my symptoms effectively before my incarceration — remained denied. The substitute medications the BOP had provided, which I had documented as ineffective from the beginning, were not reconsidered.

Six months. That is not a gap in the record. The record exists. The sick calls are documented. The responses are documented. The pattern is documented. Six months of a person with a known neurological condition, in federal custody, reporting daily debilitating pain, and receiving no meaningful change in treatment.

From the earliest days of my incarceration, I had requested a neurological consult. My condition — Persistent Post-Concussion Syndrome — is a neurological diagnosis. It requires neurological management. My treating neurologist on the outside had managed it successfully for four years. The BOP's response to every request for a neurological evaluation was consistent: it was in the system, it was pending, it would happen. It never happened. I was never seen by a neurologist during the entire period of my incarceration.

After the April 8th collapse and the injuries that resulted from it — the nerve damage, the bilateral neuropathy developing in both arms, the left foot drop that the BOP's own physical therapist would later tell me he believed was permanent — the institution's response was to initiate a protocol with physical therapy and occupational therapy. Both therapists attempted to assess my condition and develop treatment plans for injuries and neurological symptoms that fall outside the scope of their licensure. At no point was I referred to a neurologist, an orthopedic surgeon, or any physician with the qualifications to evaluate what had happened to me.

When I raised this, I was told that this was how the BOP operated. Physical therapy and occupational therapy would be managing my care.

The physical therapist eventually fitted me with a leg brace. In doing so, he formally classified me as disabled — a person requiring an assistive device to prevent falls due to left foot drop. That classification is in the record. He told me he did not know the cause of the foot drop and that he believed it was permanent.

The occupational therapist, after a period of treatment, reached her own conclusion: that what she was doing was having no impact. She identified cervical nerve compression as the likely underlying cause of the numbness and the neuropathy. She told me, plainly, that I needed to see a neurologist — and that I should pursue that evaluation when I was released from prison.

Read that again. The therapists the BOP assigned to manage my care — in place of the neurologist I had been requesting since my first days in custody — ultimately concluded, in their own assessments, that they could not adequately treat my condition and that I required the specialist I had been asking for all along. Their documentation does not say the BOP's approach was working. It says the opposite.

That framing — that PT and OT constituted an adequate medical response to documented nerve damage and a neurological condition with a four-year treatment history — is not consistent with any standard of care recognized in the medical community. The BOP is not unaware of this. The gap between what the standard of care requires and what the BOP provides is not an accident of limited resources. It is a structural feature of how the institution manages the cost of inmate medical care.

The legal standard for deliberate indifference under the Eighth Amendment does not require a single dramatic act. It requires a showing that the institution was aware of a serious medical need and failed to respond adequately. A neurological consult requested from the first days of incarceration, promised repeatedly, and never provided — while the patient's condition deteriorated to the point of collapse and permanent injury — is not ambiguous. It is a record.

I was not passive during this period. I continued to file grievances. I continued to document. I continued to advocate for myself through every mechanism available to me, knowing that the documentation I was creating was the only evidence that would matter later. There were days when the effort of documentation — of writing clearly, of describing symptoms precisely, of maintaining a coherent paper trail while experiencing the cognitive effects of untreated PPCS — felt like more than I had the capacity for. I did it anyway. Because I understood, by then, that the system would not remember anything I did not put in writing.

That understanding is the foundation of Remedy Navigators. Not the collapse. Not the Warden's letter. Not the ambulance. The six months after — the long, quiet, documented suffering that the BOP's version of events would later characterize as appropriate care — that is what this organization exists to address. Because most people going through what I went through do not have the background, the resources, or the stamina to document it the way I did. And without documentation, the institution's version is the only version that survives.

10

After

I was released from federal custody the week before Christmas, 2025. My sons came to pick me up — my wife had not been able to make it due to the repeated changes to my release date. Seeing them was emotional in a way I did not fully anticipate. As a father, as someone who had spent his adult life as a provider and a presence for his family, the circumstances of that reunion were not what I would have chosen. But they were there. That mattered more than anything else.

I immediately resumed care with my neurologist. He represcribed every medication that had been denied during my incarceration. My original PPCS symptoms — the migraines, the cognitive fog, the sleep disruption — are again well managed on the protocol that had worked for four years before I entered federal custody.

The new injuries are not resolved. I have bilateral neuropathy in both arms that continues to worsen. I have left foot drop — a condition diagnosed by the BOP's own physical therapist, who told me he did not know the cause and believed it was permanent. I wear a leg brace. My neurologist has requested the spinal MRI that was conducted during my incarceration but never transmitted due to a contract dispute between the BOP and the hospital. If the records cannot be obtained, a new MRI will be ordered.

Prison changed me. I will not pretend otherwise. The experience of being sick, isolated, ignored, threatened, and lied about — while the people responsible for your care wrote in your medical record that you were resting comfortably — leaves a mark that does not simply resolve when the door opens.

But I want to be clear about something: I did everything I was supposed to do. I followed the Administrative Remedy Process. I filed the BP-8. I requested the BP-9. I wrote letters to the Warden and to medical administration. I submitted sick calls. I sent TruLincs emails. I documented every contact, every denial, every symptom, every non-response. I advocated for myself at every appointment, through every channel the BOP makes available, at every stage of a process that is specifically designed to exhaust the people using it. I did all of it. And the system failed anyway.

That is not a statement of defeat. It is a statement of fact — and it is the most important fact I can share with anyone reading this who is going through something similar. The system is designed to fail you. The deadlines, the forms, the sequential steps, the circular referrals, the institutional non-responses — none of it is accidental. It is a structure built to produce exhaustion, not resolution. Knowing that going in does not make it easier. But it does make you harder to fool.

What I have, coming out the other side, is a record. Not a memory. Not an impression. A documented, timestamped, cross-referenced record of what happened to me, what I reported, what was denied, what was promised and never delivered, and what the institution chose to write in my file instead of the truth. That record is now the foundation for the next chapter — the pursuit of legal accountability through every remedy the law makes available. The Federal Tort Claims Act. The Eighth Amendment. Every avenue that exists to hold an institution responsible for what it did and what it failed to do.

The system that failed me fails thousands of people every year. Most of them have no record of it. They have no documentation, no paper trail, no evidence that what happened to them happened at all. Without documentation, the institution's version is the only version that survives — and the institution's version will always say the care was appropriate.

I had documentation. That documentation is the reason I have a case. It is the reason I can tell this story with specificity rather than with generalities. It is the reason the people responsible for what happened to me will have to answer for it.

If it is not documented, it did not happen.

That is the lesson. That is the reason Remedy Navigators exists. And that is what we do — for every person who is going through what I went through, so they do not have to do it alone, and so that when the time comes to hold someone accountable, the record is there.

The next chapter is already being written.

Matt Dispensa

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